Consultation reports & policy responses from the Genetic Interest Group

European Commission Health & Consumer Protection Directorate General Public Consultation “Rare Diseases: Europe’s Challenges”
GIG response
January 2008

Patients letter to Lord Darzi
This letter from GIG, Great Ormond Street Hospital and UCL Institute for Child Health calls for the removal of barriers to developing cures and treatments for life limiting conditions, which currently appear in the HFE Bill.   

The Human Fertilisation and Embryology Bill is currently (Dec 07) in the House of Lords
GIG has written a briefing which has been sent to The Lords.  HFE Briefing to The Lords.
December 2007

NHS Scotland - Better Health. Better Care
A response from the Genetic Interest Group
November 2007

MHRA consulation - challenges and priorities for the next five years
A response from the Genetic Interest Group
October 2007

MRC consultation on the supply of human embryonic stem cells
A response from the Genetic Interest Group
October 2007

Discrimination Law Review: A Framework for Fairness: Proposals for a Single Equality Bill for Great Britain.
A response from the Genetic Interest Group
Link to the full report on the Communities and Local Government website.
September 2007

Department of Health: Commissioning Framework for Health and Well-being. A consultation.
A response from the Genetic Interest Group
May 2007

National Institute for Health and Clinical Excellence (NICE) consultation on the management of care for people affected by Familial Hypercholesterolaemia
NICE scope document
GIG response to NICE FH Scoping document
July 2006

 Review of UK Health Research. A consultation launched by the Chancellor of the Exchequer to determine how this fund will be used by the Medical Research Council and the NHS R&D Programme.
Letter from Sir David Cooksey about the consultation
GIG response to the Cooksey Report
July 2006

Department for Work and Pensions Consulation - A new deal for welfare - Empowering people to work
Response from the Genetic Interest Group
April 2006

Central Office for Research Ethics Committees Consultation - Implementing the recommendations from the Ad Hoc Advisory Group
Response from the Genetic Interest Group
April 2006 

EU Proposal for a Regulation on Advanced Therapies and Tissue Engineered Products.
Response from the Genetic Interest Group
April 2006

The Human Fertilization and Embryology Authority Consultation - Choices and Boundaries.
Response from the Genetic Interest Group
January 2006

Department of Health review of the Human Fertilisation and Embryology Act
Response from the Genetic Interest Group
November 2005

Human Tissue Authority Consultation on their Codes of Practice
Response from the Genetic Interest Group
October 2005

Genetic Interest Group Patient Quality Indicator Questionaire
developed in May 2005

The Human Fertilization and Embryology Authority Consultation - Welfare of the Child - Tomorrow's Children.
Response from the Genetic Interest Group
March 2005

Academy of Medical Science a Study on the Use of Patient Data in Research
Response from the Genetic Interest Group.
December 2004

Human Genetics Commisssion consultation 
Choosing the Future: Genetics and Reproductive Decision Making. Response from the Genetic Interest Group.
November 2004

Joint Commitee on Medical Genetics and the Genetic Interest Group's response to the Human Tissue Bill.
Letter from The Joint Committee on Medical Genetics (The Royal College of Physicans, The British Society for Human Genetics and The Royal Society of Pathologists) and the Genetic Interest Group to the House of Lords sent on 7th September 2004.

For further information on the progress of the Human Tissue Bill through the UK parliament please look at the following link to the explanatory notes prepared by the Department of Health.
Human Tissue Bill - Summary.

Human Tissue Bill - following the Third Hearing in the House of Lords a response from the Genetic Interest Group 
19th July 2004

Nuffield Council on Bioethics consultation on The Ethics of Research Involving Animals.
Response from the Genetic Interest Group
November 2003

Pharmacogenetics: Ethical Issues
Response to the Nuffield Council on Bioethics from the Genetic Interest Group
January 2003

The Law on Human Organs and Tissue in England and Wales
Human Bodies, Human Choices, A Consultation Report. A response from the Genetic Interest Group.
14 October 2002

The Supply of Genetic Tests Direct to the Public
A response from the Genetic Interest Group. A consultation document. Human Genetic Commission.
July 2002

A Consultation Document on Unclaimed and unidentifiable organs and tissue
Retained Organs Commission. A possible regulatory framework. A response from the Genetic Interest Group.
June 2002

Genetics and Human Behaviour: the ethical context--GIG submission
July 2001

Whose hands on your genes?
March 2001

NICE Consultation Document "Have Your Say", GIG Response
(July 2000)

ACGT Consultation on Prenatal Genetic Testing GIG Response (May 2000)
(For a copy of the consultation document visit the Human Genetics Commission website)

Human Tissue and Biological Supplies for Use in Research. Interim Operational and Ethical Guidelines issued by the MRC (Nov 1999), GIG Response
(March 2000)

NOTE: All GIG publications are in 'Acrobat PDF' format. For help viewing documents, please click here. To order documents which have no view online option, call 020 7704 3141 or email: mail gig.org.uk