GIG Publications

• Annual Reports
• News Letter
• Consultation Reports
• GIG Publications
• Project Reports
• Workshop Reports
• policy Statements

Genetic Information for Patients in 8 languages
The London IDEAS GKP Translation Project, a collaboration with the Genetic Interest Group: This project developed and delivered patient genetic information in the principal linguistic languages of the minorities of London; GIGs role in this project promoted public and user engagement with GKP and forged networks with patient support groups. The information produced is now available to download from this website, free of charge. Please use the link above.

Patient Information Leaflets
Developed as part of the Eurogentest Project.

Human Rights, Privacy and Medical Research - Analysing UK policy on tissue and data
This report traces the impact that the right to privacy is having on the regulation of medical research and clinical practice with a particular focus on the implications for human genetics.

Research and Rare Genetic Differences: Frequently Asked Questions.
A joint publication with the Oxford Genetics Knowledge Park which highlights and answers some of the common questions asked by research ethic committees (RECs) when looking a research proposals relating to genetic disorders.

Genetic Interest Group Annual Report 2004 - 2005

Genetic Interest Group Annual Conference Report 2004
A summary of the talks that we heard at the GIG conference.
October 2004
Genetic Interest Group Annual Report 2003 - 2004
April 2004

A Genetic Condition in the Family..?

Personal accounts of those who are directly affected by genetic conditions.
Eight individual leaflets looking at specific genetic conditions and the benefits of gaining a diagnosis to the patient and family.
The Diagnosis folder

Ataxia
Cystic Fibrosis
Duchenne/Becker Muscular Dystrophies
Haemochromatosis

Hereditary non-polyposis colorectal cancer

Huntington's Disease cover
Huntington's Disease inside
Hypertrophic Cardiomyopathy cover
Hypertrophic Cardiomyopathy inside
Tuberous Sclerosis

Hereditary breast and ovarian cancer
NB each flyer is a separate PDF file.

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DNA DELIVERS: 50 Years of Progress told through the eyes of patients and their doctors
NB: This document is 1MB so will take a few moments to download
Foreseeing the future? Genes and Risk

A Guide to Organisations Critical of Human Genetics and Embryology

Clinical Governance: Meeting the Needs of Patients and their Families
A patient centred checklist for clinical genetics
January 2000

Getting Involved in Genetics Research
A guide for individuals, families and the groups that support them.
January 2000

Genetic Testing, Screening and 'Eugenics'
November 1999

Has your child a genetic disorder? (July 1999)
This simple leaflet helps parents to know what question they might like answered when suddenly given a diagnosis of a genetic disorder in their child. It was produced by a consortium of the Genetic Interest Group and two of its emmber organisations, Angelman Syndrome Support Group and Cri Du Chat Syndrome Support Group.

Educating GPs - Suggestions and Recommendations for a successful educational programme (May 1999)
This leaflet offers advice and encouragement on educating GPs about genetics, and is available from the Genetic Interest Group free of charge.

Guidelines for Genetic Services
A document designed to help genetic and other service providers and commissioners, in partnership with service users, set and monitor standards, identify areas for improvement, devise strategies to develop and improve the service, and plan for the future.
Warning: this is a large download of 1.2 mb
October 1998

Confidentiality Guidelines (October 1998)
A report considering the important questions raised by the familial character of genetic information.
Warning: this is a large download of 1.1 mb

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