PR and Media

Contact us for statements in response to government announcements, case studies and people available for interview on issues related to genetic disorders.

Please contact Communications on 020 7704 3141 who will be happy to help and/or direct you to the relevant member of staff to answer your queries.

To view archive press releases please go to our ARCHIVE PAGE

1st May 2008 : "GIG accuses the Scotsman"

29th April 2008: GSK press release: GIG has been awarded a prestigious GSK Impact Award !

29th February 2007:  A Rare Day for Rare Diseases - First European Rare Disease Day is Today.

8th October 2007: Government response will facilitate research and benefit patients
press release regarding the governments response to the Joint Committee on the Human Tissue and Embryos (draft) Bill.

1st October 2007: European patients call for MEP's to rethink stance on on the use of primates in research
EGAN press release
Letter sent to MEP's

17th May 2007: Patients and families welcome Government position on cytoplasmic hybrid research

25th April 2007: EGAN delighted as MEPs deliver therapies.
press release from European Genetic Alliance Network (EGAN)

23rd April 2007: European patients are waiting. Support the compromise package.
press release from EGAN. Regulation on Advanced Therapies.

18th April 2007: Rapporteur abuses power whilst patients are left without treatments
press release from European Genetic Alliance Network (EGAN), an alliance of national genetic alliances and European patient groups.

5th April 2007: 223 Charities sign letter to the Prime Minister urging the Government to support research into currently incurable conditions
Full list of signatories and also the letter to the Prime Minister.

26th February 2007: Tune in and listen to GIG's Radio 4 Appeal on Sunday 4th March

21st February 2007: HFEA makes a positive decision for patients and research.

1st  February 2007: Patients thank members of the EU ENVI committee for supporting their views.
press release from European Genetic Alliance Network (EGAN), an alliance of national genetic alliances and European patient groups.