Project Reports

Family Route Map Focus Group Report (plain text version) (two coloured version)
This report details the series of six Focus Groups held in 2006 for patients, their families and carers, providing us with relevant and up to date patient experience to help in developing Family Route Maps.
March 2007

Developing European Quality Standards for Patient Information on Genetic Testing
Eurogentest Interim Report
September 2006

Promoting Equity of Access to Genetic Healthcare: 
A guide to the development of linguistically and culturally competent communication services.
November 2005

Ethnic Monitoring in Clinical Genetics
July 2003

Achieving Integrated Services and Support for Families with Rare Genetic Disorders
September 1999

Access to Genetic Services by Minority Ethnic Populations
Report of a four-month pilot study undertaken to ascertain current provision of genetic services to minority ethnic populations. Written by Aamra Darr.
May 1999

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